On the other side

We made it!  Ethan is getting situated in PICU!  It won't be long and I will have my baby boy by my side again!

Everyone keeps telling us how great he did!

Halfway There

Neurosurgeon is done.  Bones were fused kind of weird but was fixable.  Plastic surgeon is still molding skull back together.  Should be done in a half hour or so.  Hasn't needed a blood transfusion yet.  Everything is going great so far.

Just getting started

Just getting started as it took awhile to get all the lines in.

And so it begins

After running behind by about a hour and a half, Ethan is finally is surgery.  As we get updates, I will try and post them here.    Please keep Ethan in your thoughts and prayers as well as the surgeons, nurses and other staff as my baby's life lays in their hands.

It's the Final Countdown!

We had Ethan's pre-op physical done on Thursday.  And as long as he doesn't get sick, we got the go ahead for surgery.

Surgery will be on September 5th at 11:15.  We have to be at the hospital by 9:15.  I sure hope they are on time because chunky monkey can't eat after 7:15.  Poor kid can't go 3 hours without eating.

We appreciate everyone's kind words and thoughts.  The first night after surgery we will be in ICU, so at that time we would appreciate not having any visitors.  However after we are moved to the surgical floor, Ethan would love to see or hear from you if his eyes are swollen. I will try and keep the blog updated during surgery.  Here's to seeing Ethan in the other side.

3 Year and 4 Month Check-ups

For the first and only time, Braydon and Ethan were able to get their well checks at the same time.

Braydon weighs 35 lbs (80th percentile) and is 3 ft 1 and 3/4 inches tall (48th percentile).  He had a blood pressure of 103/66 and a pulse of 115.  Developmentally he is right on track and even above the curve when it comes to recognize numbers and counting.  So Dr. Davey told us if we want to start some phonics and having him read to us we could do that.  Here's to hoping I can have my own Little Einstein.  :)

Ethan weighs 16 lbs 3 oz (70th percentile), is 24 1/2 inches tall (30 percentile) and head circumference of 44 1/4 cm (90th percentile).  Developmentally he is also fine, so while we have an issue with Cranio, it is not causing any developmental delays and we won't be doing any further testing on the boys.  We also got the go ahead to start on cereal and solid foods if Ethan likes the cereal. 

So besides their funny head shape, my boys are as close to perfect as they can get.  And I will take it because I couldn't ask for anything better.

Braydon 3 Year

Braydon 3 Year

Ethan 3 Month

Ethan 3 Month

Is it Genetic

Heard from the geneticist today.  Which was a lot sooner than expected.  So the good news is that their Cranio panels came back normal.  So technically we still don't know what caused both boys to have Sagittal Craniosynostis.  However the geneticist thinks that it somehow results from Terry, but I guess we will never know.

She wants to follow up with them in a couple of years, unless they show signs of developmental delays. She asked how Ethan was doing and when I mentioned his headaches, she suggested I call Puccioni's office to see if surgery could be sooner.  Depending on how bad things get, we may call after Braydon's birthday party.  If not the countdown is now at 48 days.  

Thank you again to all those who have thought and prayed for us.  Your thoughts and words mean everything to us.