Craniofacial Clinic Appointments

So the boys had their clinic appointments today.  Since we have already been through one surgery we didn't have a lot of questions.  So we ended up doing more waiting then meeting with the doctors.  Plus our neurosurgeon had an emergency so we didn't even get to meet with him.

We did meet with a geneticist, and she's pretty sure there is some genetic reason as to why our boys have Cranio.  It's just whether or not we can find it.  So we went ahead and got both boys tested.  Let me tell you that was a fun half hour, especially after being there for 3 hours already :).

We won't be able to find out the results for probably 3-4 months.  Next stop on the journey is Ethan's surgery on September 5th.

It's the Final Countdown!

I guess I haven't posted an update for a very long time.  We heard back from Dr. Miller's office and we have a surgery date.  January 13, 2011 will be the day when Braydon gets his life back and we can take our final ride on the cranio roller coaster (at least we hope).

Braydon is 20 weeks old today.  I can't believe that we have had this precious baby boy with us for that long.  It just seems like yesterday that we found out we were pregnant.  And now we are counting down the days until he goes in for a major operation on his head.

Now I know we have had our issues with sleeping at night and a whole lot of fussy periods, but when he laughs and smiles it makes me forget all about the hard times.  I'm also thankful that we have him in our lives, especially after Terry and I found a missing girl wandering in front of our house.  I don't know what I would have done if that would have been Braydon wandering the streets alone.

I am also thankful that through Craniokids.org, we have found another family that has a daughter with the same condition as Braydon.  They are waiting on their surgery date, but I would assume that it has to be close to Braydon's date.  While we appreciate all of your prayers, please pray for them and all of the other families that are dealing with this as well.  It's not the easiest journey, but it gives me comfort knowing that I'm not the only one on this path.

Braydon says keep on smiling.