Thank you for visiting. Braydon was diagnosed with Craniosynostosis at his 2 month check-up. I hope that reading his story, it will help out another family going through a similar situation. Also Ethan was diagnosed with Craniosynostosis at 1 week old.

Saturday, September 7, 2013

Finally Moved to Intermediate Care

At about 5 o'clock we finally got a room up on the intermediate care floor.  So now we are accepting visitors if you want to come up, just text me and I can tell you the room number.  However we may get to go home tomorrow so there might not be much time to visit.  So go ahead and call first and I will let you know where we are at.

Ethan is doing a lot better.  He is eating like his normal self and his eyes aren't as swollen anymore.  He still has a lot of swelling in his head though.  Right now he's watching the Michigan Norte Dame game because we don't get the special Big Ten Network channels here.  So Terry facetimed his brother on our ipad and is watching the game over my phone.

I will try and post another update before we get home.

Still in ICU

Well, we are still in ICU thanks to an over crowded hospital.  Oh well, hopefully we will get to move today.  Ethan slept a lot better than he did last night.  Last night was pretty rough for us.  He was easily agitated and ended up needing a blood transfusion.  He is doing a lot better though and his blood work had come back clean.  However his eyes are swelling shut so I have a feeling we will be in here longer than we thought because of the swelling.  Thank you for your continued thoughts and prayers!

Friday, September 6, 2013

Into to the morning....

So we are technically into day 2 of our hospital stay as it is now after midnight.  Terry let me sleep for a couple of hours so I should be able to stay up for the rest of the night.  Ethan is such a trooper.  He already managed to get rid of his arterial line and one of his IVs.  Granted he did them himself and he probably shouldn't have lost them this quickly, but if it means I get to hold him sooner, I'll take it.

He has had 1 oz of Pedialyte and seems to be holding it down, so we will start giving him an ounce or two of breast milk.  Once he can keep that down, we can start Lortab and Tylenol as his pain medicine and that's one step closer to getting out of ICU and onto the regular floor.  Which also means we are a step closer in taking him home.

Terry and I can't tell you how much it means to us that our family and friends took their time to text, call or facebook post that they were thinking about us.  We truly felt your support and I think that's why it seemed to go so fast once we finally got into surgery.  Also I truly believe you guys provided the strength Ethan had while waiting for surgery.  He was barely fussy even though he hadn't gotten to eat for over 6 hours.  And if you can see, he rarely misses a meal.  :)

I will try and post another update once we get moved onto the regular floor.

Thursday, September 5, 2013

On the other side

We made it!  Ethan is getting situated in PICU!  It won't be long and I will have my baby boy by my side again!

Everyone keeps telling us how great he did!

Halfway There

Neurosurgeon is done.  Bones were fused kind of weird but was fixable.  Plastic surgeon is still molding skull back together.  Should be done in a half hour or so.  Hasn't needed a blood transfusion yet.  Everything is going great so far.

Just getting started

Just getting started as it took awhile to get all the lines in.

And so it begins

After running behind by about a hour and a half, Ethan is finally is surgery.  As we get updates, I will try and post them here.    Please keep Ethan in your thoughts and prayers as well as the surgeons, nurses and other staff as my baby's life lays in their hands.