Thank you for visiting. Braydon was diagnosed with Craniosynostosis at his 2 month check-up. I hope that reading his story, it will help out another family going through a similar situation. Also Ethan was diagnosed with Craniosynostosis at 1 week old.

Thursday, July 25, 2013

3 Year and 4 Month Check-ups

For the first and only time, Braydon and Ethan were able to get their well checks at the same time.

Braydon weighs 35 lbs (80th percentile) and is 3 ft 1 and 3/4 inches tall (48th percentile).  He had a blood pressure of 103/66 and a pulse of 115.  Developmentally he is right on track and even above the curve when it comes to recognize numbers and counting.  So Dr. Davey told us if we want to start some phonics and having him read to us we could do that.  Here's to hoping I can have my own Little Einstein.  :)

Ethan weighs 16 lbs 3 oz (70th percentile), is 24 1/2 inches tall (30 percentile) and head circumference of 44 1/4 cm (90th percentile).  Developmentally he is also fine, so while we have an issue with Cranio, it is not causing any developmental delays and we won't be doing any further testing on the boys.  We also got the go ahead to start on cereal and solid foods if Ethan likes the cereal. 

So besides their funny head shape, my boys are as close to perfect as they can get.  And I will take it because I couldn't ask for anything better.

Braydon 3 Year

Braydon 3 Year

Ethan 3 Month

Ethan 3 Month

Friday, July 19, 2013

Is it Genetic

Heard from the geneticist today.  Which was a lot sooner than expected.  So the good news is that their Cranio panels came back normal.  So technically we still don't know what caused both boys to have Sagittal Craniosynostis.  However the geneticist thinks that it somehow results from Terry, but I guess we will never know.

She wants to follow up with them in a couple of years, unless they show signs of developmental delays. She asked how Ethan was doing and when I mentioned his headaches, she suggested I call Puccioni's office to see if surgery could be sooner.  Depending on how bad things get, we may call after Braydon's birthday party.  If not the countdown is now at 48 days.  

Thank you again to all those who have thought and prayed for us.  Your thoughts and words mean everything to us.