Thank you for visiting. Braydon was diagnosed with Craniosynostosis at his 2 month check-up. I hope that reading his story, it will help out another family going through a similar situation. Also Ethan was diagnosed with Craniosynostosis at 1 week old.

Friday, July 19, 2013

Is it Genetic

Heard from the geneticist today.  Which was a lot sooner than expected.  So the good news is that their Cranio panels came back normal.  So technically we still don't know what caused both boys to have Sagittal Craniosynostis.  However the geneticist thinks that it somehow results from Terry, but I guess we will never know.

She wants to follow up with them in a couple of years, unless they show signs of developmental delays. She asked how Ethan was doing and when I mentioned his headaches, she suggested I call Puccioni's office to see if surgery could be sooner.  Depending on how bad things get, we may call after Braydon's birthday party.  If not the countdown is now at 48 days.  

Thank you again to all those who have thought and prayed for us.  Your thoughts and words mean everything to us.

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