Thank you for visiting. Braydon was diagnosed with Craniosynostosis at his 2 month check-up. I hope that reading his story, it will help out another family going through a similar situation. Also Ethan was diagnosed with Craniosynostosis at 1 week old.

Tuesday, June 25, 2013

Craniofacial Clinic Appointments

So the boys had their clinic appointments today.  Since we have already been through one surgery we didn't have a lot of questions.  So we ended up doing more waiting then meeting with the doctors.  Plus our neurosurgeon had an emergency so we didn't even get to meet with him.

We did meet with a geneticist, and she's pretty sure there is some genetic reason as to why our boys have Cranio.  It's just whether or not we can find it.  So we went ahead and got both boys tested.  Let me tell you that was a fun half hour, especially after being there for 3 hours already :).

We won't be able to find out the results for probably 3-4 months.  Next stop on the journey is Ethan's surgery on September 5th.


  1. Those are some handsome boys!! :::hugs:::

  2. Ugh. I couldn't imagine waiting that long with both kids. It's usually faster, right? They are both very handsome boys, but Braydon...could his head be more perfect?! I think he looks AMAZING! Just wait until Adeline sees that perfect cranium! :) We are still praying for you all. xoxo