Welcome

Thank you for visiting. Braydon was diagnosed with Craniosynostosis at his 2 month check-up. I hope that reading his story, it will help out another family going through a similar situation. Also Ethan was diagnosed with Craniosynostosis at 1 week old.

Tuesday, January 4, 2011

He's almost done

They are closing up the incision and going to clean him up.  Then the doctors will come out and tell us how it all went.

Update #3

They are still working on the skull.  They need to figure out how to put it back together.  Braydon did end up needing a blood transfusion.  Once the doctors come back out we'll be able to know how much.  I guess all that iron we gave him was all for not.

Update #2

They are still working on the skull.  The nurse who does the updates leaves at 4:30 so that might be our last update.  They are seeing what they can do to make sure we still get our updates.

1st Update

Everything is going good.  They've made the incision and they are mapping out what pieces they are going to remove from his skull.

I missed the update so I'm just repeating what Terry said.  But they say he is doing good.

And the fun has begun...

Braydon went back to surgery about 2:30.  We should have our first update in about a half hour.  However it's going to take about a hour for the anesthesiologist to get all of her work done before they can make their incision.  Of course the plastic surgeon is running late.  But they are going to start anyways since the Anesthesiologist and Neurosurgeon need to do their work first.

It was a tearful good bye, but I know Braydon is an excellent hands.  Once we hear back from the news I'll post an update.

Monday, January 3, 2011

Tomorrow is the day

I can't believe that it was only 3 months ago when Braydon was first diagnosed.  It seems like it was forever ago and also that time flew by quickly.  If you know what I mean.

We took Braydon to the C.A.R.E.S unit to get his Pre-Op blood work done.  Braydon had every single news oohing and awing over him.  Everyone want to hold him and just snuggle with him.  He's going to get some serious attention in Recovery.  My little champ didn't even cry when they stuck him with the needle.  I freak out every time they draw my blood.  Braydon must have gotten his Daddy's veins because they only had to stick him once and hit the jackpot right away.

We then met with the Anesthesiologist.  She looked over Braydon and listened to his lungs.  She gave him the go ahead for tomorrow as long as he doesn't come down with something tonight or tomorrow morning.  She told us that it will take a hour to get him prepped and under before the surgery will start and then about a hour to wake him up and get the breathing tube out.  We will most likely get updates about every hour and if problems arise the anesthesiologist will come out and talk with us.

Braydon is sleeping, but I'm sure if he wakes up in the middle of the night I won't mind the extra snuggle time.  We want to thank everyone for their love and support and we can't wait to get to the other side.

Please check back tomorrow as I'll be posting updates as the day progresses.  This way you'll get the latest update and won't have to count on me returning a phone call or text.

Saturday, January 1, 2011

Happy New Year!

2010 was truly a blessing for Terry and myself.  We welcomed a beautiful baby boy in July and also a nephew a couple of days later.  While the last 2 months were definitely hard work trying to get Braydon's surgery scheduled and getting a diagnosis, we couldn't have asked for a better year.

2011 will definitely start off with a bang and I know those first few days are probably going to be some of the most difficult days we will have to get through.  But after that we can look forward to so many good things that are going to happen throughout the year.  Another cousin for Braydon to play with, a couple of weddings to attend and the birth of some friends' babies. 

To end 2010 I was able to go visit another Cranio baby who had surgery on Wednesday.  I've been following her blog and needless to say, I probably shouldn't have read some of the posts so close to Braydon's surgery.  But it was so comforting to see that they truly are resilient.  Granted her head was pretty swollen, but she looked so peaceful and is a beautiful baby girl.  Maybe her and Braydon can be scar twins when they get older.  It's a shame they live a couple of hours away. 

I can't thank the Laake family enough for letting me spend time with their daughter.  It's amazing what type of support you can find on the internet.  I want to also thank all the families on Craniokids.org.  There is no way Terry and I would have survived the diagnosis without all of your advice.  We wouldn't have been armed with a wealth of knowledge when we met with the doctors.

After his surgery I'm going to turn this blog into something positive and make sure to update everyone on Braydon's milestones.  And the rain clouds are going to disappear and it's going to be nothing but sunshine from here on out.

We hope that 2011 brings you nothing but happiness and sunshine and that all of your miracles and wishes come true.