Welcome
Thank you for visiting. Braydon was diagnosed with Craniosynostosis at his 2 month check-up. I hope that reading his story, it will help out another family going through a similar situation. Also Ethan was diagnosed with Craniosynostosis at 1 week old.
Saturday, September 7, 2013
Still in ICU
Well, we are still in ICU thanks to an over crowded hospital. Oh well, hopefully we will get to move today. Ethan slept a lot better than he did last night. Last night was pretty rough for us. He was easily agitated and ended up needing a blood transfusion. He is doing a lot better though and his blood work had come back clean. However his eyes are swelling shut so I have a feeling we will be in here longer than we thought because of the swelling. Thank you for your continued thoughts and prayers!
Friday, September 6, 2013
Into to the morning....
So we are technically into day 2 of our hospital stay as it is now after midnight. Terry let me sleep for a couple of hours so I should be able to stay up for the rest of the night. Ethan is such a trooper. He already managed to get rid of his arterial line and one of his IVs. Granted he did them himself and he probably shouldn't have lost them this quickly, but if it means I get to hold him sooner, I'll take it.
He has had 1 oz of Pedialyte and seems to be holding it down, so we will start giving him an ounce or two of breast milk. Once he can keep that down, we can start Lortab and Tylenol as his pain medicine and that's one step closer to getting out of ICU and onto the regular floor. Which also means we are a step closer in taking him home.
Terry and I can't tell you how much it means to us that our family and friends took their time to text, call or facebook post that they were thinking about us. We truly felt your support and I think that's why it seemed to go so fast once we finally got into surgery. Also I truly believe you guys provided the strength Ethan had while waiting for surgery. He was barely fussy even though he hadn't gotten to eat for over 6 hours. And if you can see, he rarely misses a meal. :)
I will try and post another update once we get moved onto the regular floor.
He has had 1 oz of Pedialyte and seems to be holding it down, so we will start giving him an ounce or two of breast milk. Once he can keep that down, we can start Lortab and Tylenol as his pain medicine and that's one step closer to getting out of ICU and onto the regular floor. Which also means we are a step closer in taking him home.
Terry and I can't tell you how much it means to us that our family and friends took their time to text, call or facebook post that they were thinking about us. We truly felt your support and I think that's why it seemed to go so fast once we finally got into surgery. Also I truly believe you guys provided the strength Ethan had while waiting for surgery. He was barely fussy even though he hadn't gotten to eat for over 6 hours. And if you can see, he rarely misses a meal. :)
I will try and post another update once we get moved onto the regular floor.
Thursday, September 5, 2013
On the other side
We made it! Ethan is getting situated in PICU! It won't be long and I will have my baby boy by my side again!
Everyone keeps telling us how great he did!
Halfway There
Neurosurgeon is done. Bones were fused kind of weird but was fixable. Plastic surgeon is still molding skull back together. Should be done in a half hour or so. Hasn't needed a blood transfusion yet. Everything is going great so far.
And so it begins
After running behind by about a hour and a half, Ethan is finally is surgery. As we get updates, I will try and post them here. Please keep Ethan in your thoughts and prayers as well as the surgeons, nurses and other staff as my baby's life lays in their hands.
Saturday, August 31, 2013
It's the Final Countdown!
We had Ethan's pre-op physical done on Thursday. And as long as he doesn't get sick, we got the go ahead for surgery.
Surgery will be on September 5th at 11:15. We have to be at the hospital by 9:15. I sure hope they are on time because chunky monkey can't eat after 7:15. Poor kid can't go 3 hours without eating.
We appreciate everyone's kind words and thoughts. The first night after surgery we will be in ICU, so at that time we would appreciate not having any visitors. However after we are moved to the surgical floor, Ethan would love to see or hear from you if his eyes are swollen. I will try and keep the blog updated during surgery. Here's to seeing Ethan in the other side.
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