We finally met with the Neurosurgeon today and was able to get a course of treatment. Dr. Puccioni provided us with 2 options.
1. Do the surgery using an endoscopic method or
2. Do the surgery using the Posterior Cranio Vault Remodel method
Some may advertise the endoscopic method as less invasive, but according to the doctor it's not really the case. He typically only does the endoscopic method on children 6 weeks old and younger and recommended the CVR method.
So that's what we chose. What will happen is that they will make an incision from ear to ear and pull back the scalp. They will then remove the skull and piece it together so that Braydon's brain can actually grow and his head will have a more round shape instead of the long and narrow shape it currently is.
Dr. Puccioni will work with Dr. Miller. We meet Dr. Miller on Monday, November 8th and from there we will schedule the surgery. Forgoing the surgery is not an option as Dr. Puccioni believes that there is a high amount of pressure on his head due to the fusion of the skull. While we finally have a course of treatment, it's still going to be a long journey. It looks like his surgery will be this year but after Thanksgiving.
Thank you to all of you for your love, support and prayers. They haven't gone unnoticed and are greatly appreciated.
And Braydon says keep on smiling.