Thank you for visiting. Braydon was diagnosed with Craniosynostosis at his 2 month check-up. I hope that reading his story, it will help out another family going through a similar situation. Also Ethan was diagnosed with Craniosynostosis at 1 week old.

Sunday, July 3, 2011

Life on the run...

I know it's been a long time since the last time I posted.  You all probably thought I had forgotten about this blog.  But life with a mobile 11 month old has been crazy.  Since the last update we have gotten 2 bottom teeth and the top 2 have broken through.  We learned to crawl and went to see Grandma and Grandpa Pitzer in Louisville.  So we got to go on our first airplane.  Over the last couple of weeks we have even started to walk.  Every day Braydon takes more and more steps.

This makes me cry tears of joys.  It's amazing that 6 months ago we were awaiting a surgery and wondering if our baby boy was ever going to be "normal".  He was perfect to us, but to other standard he wasn't.  He wasn't hitting his milestones and his head was shaped like a football.  It was 6 months ago that we took him to Children's Hospital and left our baby boy's life in the hands of 2 surgeons.

Now 6 months later and you could have never known that he had super dark hair when he was born or that his head was shaped like a football.  You would have never known that he cried all night long or that all he ever wanted was to be held and lay still.  Because all he wants to do is go go go.  He has super blonde hair and his head is perfectly round.  He's walking at 11 months and hitting the milestones at a lot earlier age.  He's learning to use the sippy cup, but I still think breaking him from the bottle is going to be hard.  He eats all table food now, even though Terry mashes it up to look like baby food sometimes.  He worries that Braydon is going to choke.  Braydon likes to stuff handfuls of food into his mouth. 

We always thought we were going to have a baseball player, but we might end up with a linebacker.  As this little guy has learned the art of charging the dog or us and lowering his head.  I worry that his head will break, but he shows no fear.  He is our miracle and I thank god every day for the blessing that he provided us.  Times were tough and they still can be trying, but I could never imagine having as much strength as our little boy had when he went into the operating room.  I also wish I could live without fear the way he does, but hey someone has to worry right?

In less than one month we will celebrate his first birthday.  It's amazing how far we have come in the past year and can't wait to see what the future has in store.

Before Surgery -

After Surgery -

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