Thank you for visiting. Braydon was diagnosed with Craniosynostosis at his 2 month check-up. I hope that reading his story, it will help out another family going through a similar situation. Also Ethan was diagnosed with Craniosynostosis at 1 week old.

Tuesday, March 24, 2015

Another Ride on the Cranio Roller Coaster

First off, let me apologize for not keeping up with the blog.  But life with 3 kids is rather hectic.  That's right, you did read that right.  Terry and I now have 3 children.  We are totally out numbered.  We found out we were pregnant last June.  In October, we found out that we were having a little girl.  Lauren Cynthia made her arrival on January 19, 2015.  Due to a questionable ultrasound and our family history, we knew right away by feeling her head that she indeed did have sagittal craniosynostosis.  X-Rays were taken the next day to confirm diagnosis.

We were already scheduled for the Craniofacial Clinic at Children's Hospital to meet with her surgeons and genetics.  Not a big deal, because this is our 3rd time doing this.  Pretty much all they did was feel her head and walk out of the room.  Because we pretty much know the drill.  The genetics counselor is going to see if there is anyone out there doing research on craniosynostosis to see if they want to study the kids.  Because it is really rare to have 3 children with the same thing and no other issues or family history.

We also got a Ct scan to determine if indeed her coronal sutures are fused as well because they aren't sure if they are or not even though x-Rays said that they were.  We also got  confirmation that her surgery will be June 19th at 11:00 am.

That's all I have for right now.  I really will try to get an update if we hear back from Genetics.

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