Thank you for visiting. Braydon was diagnosed with Craniosynostosis at his 2 month check-up. I hope that reading his story, it will help out another family going through a similar situation. Also Ethan was diagnosed with Craniosynostosis at 1 week old.

Monday, September 24, 2012

Since You've Been Gone

I know it's been a super long time since I last posted.  But life with a 2 year old has been extremely busy.  Things have been going fairly well with Braydon's head shape.  However about 6 months ago we noticed that it was a little bowing in the front.  We saw Dr. Miller, and he suggested we talk to Dr. Puccioni.  It took about a month for us to be seen, but that's ok we weren't that worried.  Pretty much he told us that the decision to have the 2nd surgery was ultimately ours.  It would strictly be cosmetic and at that point in time Braydon's head was borderline in what he would recommend getting fixed.  So we decided to wait and see.

In the meantime we had Braydon's 2nd birthday party.  Of course it was Thomas the Train themed.  Braydon loves Thomas as well as all trains.  But what 2 year boy wouldn't love trains.  Don't get me wrong, he loves sports too.  Every time there is a football game on, he says "football awesome."

Braydon seems to be hitting his milestones nicely.  He's starting to speak in sentences, knows around 50-75 words.  He knows his letters and is starting to count to 5.  As far as growth is concerned his head is 51.25 cm (96th percentile), 31 lbs (71st percentile) and 33.75 inches tall (26th percentile).  We couldn't be more happier with how things have turned out.

Which leads us to today.  We had our follow up with Dr. Miller this afternoon.  He pretty much walked in and said his head looks great.  That we probably won't need the 2nd surgery, but he still wants to follow up on a yearly basis to make sure the skull continues to grow.  So since we got such good news today, we would figure that we would share some more good news with you.  Braydon is going to be a big brother.  Baby B-2 is scheduled to arrive in early April.  We couldn't be more thrilled, however very cautious.  While we know that Braydon's condition was a "fluke", we still are concerned that any subsequent children we have might have the same condition.  If it were to happen again, at least we are "prepared" for what is going to happen.

I hope that everyone has enjoyed their summer and gets to enjoy the fall (that is if you even get one).


  1. Braydon is such a handsome boy! Congrats on ALL the good news!