Thank you for visiting. Braydon was diagnosed with Craniosynostosis at his 2 month check-up. I hope that reading his story, it will help out another family going through a similar situation. Also Ethan was diagnosed with Craniosynostosis at 1 week old.

Wednesday, January 5, 2011

They say the first night is the roughest

Well if that's the case then I think I can handle this.  While it's no fun to hear Braydon moan in pain, he hasn't really been crying out and has slept for most of the night.  Terry and I have been taking hour shifts sitting up with him in case he needs anything.  While a hour sleep at a time isn't the greatest, at least it's giving us both some rest that we both need.

Well the little piggy is still in there.  He had 1 oz of pedialyte last night and kept it down so they let us give him the rest.  He chugged it down like a shooter.  A couple of hours later they let us give him 3 ounces of breast milk and he took it like a champ.  He didn't throw it back up.  So this morning he was able to get another 3 ounces.  So far so good.  I'm hoping that soon I will get to hold him as I think they'll be removing some of the wires.

Thank you again for all your love and support.  We can feel it from near and far.

1 comment:

  1. Fiona did well the first night as well, a couple days later when her eyes were swollen shut is when she started getting really mad :-) But I could handle it.

    I'm so glad that he is doing so well. Hopefully today they will take out some of the wires.